Share your own stories and experiences

A lot of people have responded with their own personal experiences in the comment sections of the various posts I have made. This is very good, but it’s probably not ideal for people who are coming to this website to look for these stories, because they are scattered all over the place and harder to track. If you wish to post your own story in future, I recommend that you post a comment here.

Thank you 😛

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125 Responses to “Share your own stories and experiences”


  1. 1 Goyam August 6, 2010 at 7:18 pm

    How are you doing? Hows the scar looking? I’ve read through your whole story and feel great knowing there are others like little old me.

    I’m hoping the fistula has healed and that you will be fistula free the rest of your life.

  2. 2 painintheanus August 21, 2010 at 12:40 am

    The scar is gradually losing its colour and blending in with the skin around it. The only thing I have to look out for is spicy food, as it can sometimes irritate my wound/anus after I go to the toilet. I generally shower after a “hot shit” to avoid this, because there’s no way I’m giving up spicy food ;]

    Good luck with your surgery/healing (?), I’m glad you benefited from me and others posting our stories online. Feel free to post a brief summary of your experience 🙂

  3. 3 zerleenah September 18, 2010 at 5:50 am

    I’m very confused my mother have an old wound for years the wound was healed by its own with a lot of help from Nursing staff of La Mesa Health Care Center. It first started out a calcium deposit on her upper thin. The wound was 11cm wide and 9cm deep.It takes time to healed it. But now it open back again and the surgeon want to do a wound fistula. She very sad to think about it because we are planning a trip back home this coming Holiday. So my question is it worthy to have this done?

  4. 4 Karol November 9, 2010 at 12:26 am

    Are there still people responding to any questions?? I have a few!!

  5. 5 becky April 15, 2011 at 3:36 am

    I too have a fistula. I had a plug surgically placed on 1/7/2011 by a general surgeon. It’s still not healing and I need more surgery. I decided to go to a colorectal specialist, and my next surgery is 4/21/11. I will need another surgery in 2 months. My fistula is so complex that it can’t be tackled in one surgery otherwise I would be left incontinent for the rest of my life. Normally, fistulas are 1-2 cm and mine is 3-4 inches!

    For anyone reading this & having this problem, GO TO A COLON/RECTAL SPECIALIST. Don’t waste your time with a general surgeon. It’s too delicate of a situation.

    Thanks for the blog. I can relate very well to these stories. Who really wants to talk about their fistula? I’m glad I’m not alone.

  6. 6 Bobby May 24, 2011 at 8:58 pm

    I dont know if anyone is still reading this blog who previously posted, however I wanted to send my heartfelt thanks. I am due for surgery in the next month, and have been very anxious. There are a lot of scare stories online, and although I appreciate everyone is different, it was good to hear so many people have felt some benefit of having the treatment. And that life can be normal afterwards.

    This illness is sadly not a conversation to have with friends over dinner and so I have often felt, like others, alone.

    Becky – you posted last, I really hope everything went well for you. And for everyone else undergoing treatment right now.

  7. 7 louise June 1, 2011 at 2:09 pm

    Well… let me tell you about my experience! i noticed a lump on my left bumcheek approx sept last year, this wasnt sore i just happened to notice it really. Kept an eye on it and it did very gradually get a bit bigger so i plucked up the courage to go to the doctor in the november where i was advised to go away and see how it progressed for about 3 months. I was quite happy with this seeing as it wasnt giving me any pain or discomfort.
    So this continued to grow and had started to get big and painful rapidly so returned to the doctor in the march (should have gone earlier but its one of those things you dont really want people looking and prodding at!) and referred on to the surgeons for a possible cyst of some sort to be removed. the app was made for beginning of may however i didnt last that long.
    The thing continued to grow and grow and started to become a visable lump and small red angry looking spot on the skin and was getting really painful so much so i couldnt sit down without perching on one bumcheek i couldnt lie in certain positions and it was difficult to walk for long periods of time.
    had been walking to work one day while the thing throbbed away and suddenly i felt a really sharp pain every time i took a step and it got worse and worse and i thought it had exploded! (now by this point, feeling this thing it was about an inch and a half long and a good couple of centimeters wide so for this to burst would never be a good thing!)
    so got to work and went to the toilet and sure enough it had eventually worked its way to the top of the skin and was oozing out pus and thought this was probably the lesser of two evils cause if it had burst in the other direction it could have caused a lot of prpblems! so decided that i had to go to the doctors! however whenever im ill or have to see a doctor its always a holiday weekend and this was the friday.so called up the out of hour doctor and was seen that night and prescribed painkillers and antibiotics.
    2 days later it had shrunk so dramatically it was unreal, you could just about feel it and no more.so just thought id had a whopper of an infection and nearly cancelled my appointment with the surgeon for 2 weeks time.
    good job i didnt. stopped the antibiotics on the friday and appointment for surgeon was the following thursday. by the thursday it had been oozing for a couple of days and could feel it growing again.
    the surgeon was lovely. however as im female he had brought in a chaperone for the examination without asking! i would have declined the less people that get to look at this the better! had been asked all the times before. anyway that was the least of my problems really. had a wee feel and immediately and confidently diagnosed it as a fistula and was booked in for surgery 2 weeks after. ( i had told him i had an important fitness test mid june and really didnt want to jeopardise this by keeping me out of running for a couple of weeks after surgery- and he made exceptions and went out his way to see me asap! thought that was lovely of him!)
    so had the surgery on friday so 5 days ago, had been terrified after all the stories about how it makes life hell, it makes you incontinent, its exceptionally painful, it grows other roots from it and makes it a complicated surgery, the surgery doesnt work and all sorts and as a 21yr old female, that kind of problem is the last thing in the world i want and need getting in my way. but yeah, woke up from the surgery feeling as though i had done a HUUUGE poo only because they did a rectum exam that i gladly knew nothing about till yesterday! but other than that fine. went home the same day as the surgery with a giant bandage on which just felt like a nappy and took this off the following day as advised. had been desperate to see what it looked like so had an akward look in the mirror (getting good at looking at by bum in the mirror!) and just looked like a slit from my bumcheek in towards my anus about 2inches long and when i bend over it opens which i find quite amusing! this has given me no pain at all! which i am completely surprised at, had been given painkillers and havent taken them. the only thing that isnt so good is the seton that had to be placed in to coax the rest of the fistula away from the bumhold muscles! as for obvious reasons they didnt want to cut into those precious muscles! the seton isnt painful but it can be quite uncomfortable, if i lie flat or sit in certain positions then it digs in- i will stress though for anyone reading this before surgery of their own ITS NOT THAT BAD!! the seton doesnt hurt its just a bit frustrating cause you cant always just plonk yourself down you kinda need to gently put yourself on to the seat etc to make sure it doesnt poke at you.
    went for my check up with the nurse yesterday to make sure it was nice and clean etc and all is good, mine hasnt been packed either which i think is fab 🙂 the wound isnt very deep though its just long! and ill get further surgery in6-8 weeks to get the seton and everything else removed 🙂 and fingers crossed that will be me all done!!!

    so it took me a while to get it seen to, not sure how any if it happened, most probably an abcess as it responded to the antibiotics but i dont know how i got that either!
    anyhoo hope that helps anyone!
    would also be interested to hear if anyones ever came back??? dont really want a life of surgery to look forward to! 🙂

  8. 8 dcteach June 7, 2011 at 12:22 am

    I have a high posterior fistula and have had seven surgeries over the past year. Check out my blog for my story, hopefully there will be some helpful information there!

    http://fightingmyfistula.wordpress.com/

  9. 9 Anonymous June 9, 2011 at 7:40 pm

    My surgery on 4/21/11 was soooooooo much easier than my January surgery. (In fact, my insurance company has refused payment to the first surgeon 3 times – they said he has to write it off.) A seton stitch was placed by a very qualified colo-rectal surgeon, and I was back to work in a few short days. I’m still not fully healed – but healing very well & it is still draining. I see my doctor again on 6/15/11 and I’m hoping for great results. I can see the end in sight! There is a possibility that I need another surgery since my fistula was so complex. But I’m not worried anymore, I’m with a great doctor & he’ll get me through this. ~ Becky

  10. 10 Becky June 9, 2011 at 7:51 pm

    Bobby – I too had a lot of anxiety about this process & certainly worried about going under anesthesia. I finally came to the conclusion that I would be so much happier once this was taken care of & over. It might be a long healing process, but for me, it’s not as bad as I thought it would be. I’m not even embarrassed to bare it all in front of the doctor anymore! I wish you luck, you will be just fine. Hopefully you can see this post & know that I’ll be thinking of you & your speedy recovery! Becky

  11. 11 Becky June 20, 2011 at 1:59 pm

    Saw my Dr. for a followup on 6/15/11. Everything is healing very well, I received a great report from the doctor. The seton is working it’s way through, and now sticking out farther than before. Every once in a while I feel a sharp pain, almost like a needle prick. That must be the seton working it’s way through. (The pain doesn’t last & it’s certainly nothing to complain about – all part of the normal process.) I need to have another surgery at the end of July to complete the fistulotomy. Next followup appt: July 6th.

  12. 13 Bobby July 10, 2011 at 3:58 pm

    Hi, me again. Glad to hear things are going ok for you Becky – really sounds like there is light at the end of the tunnel. My news….I had my “lay open” surgery a few weeks back now. The surgeon was being cautious (rightly) and as the fistula was deeper than anticipated he chose to fit a seton while I had an MRI scan. The result of that scan is that its not sooooo bad as he thought. I have an appointment with my surgeon again in a few weeks time to discuss my options, I know one option is the plug which I believe has variable results. The seton is ok….obviously far from ideal 😉 but is not painful as such, just a small discomfort every now and again. Fingers crossed for a good result in a few weeks. I think I have a good surgeon which makes a big difference. Best wishes to everyone reading.

  13. 14 Help July 29, 2011 at 8:58 pm

    Ummm I’m 15 and just the other day my Ass( by the Crack) was itching bad. And I went into my restroom and Saw that I have A Hole.What should I do?! And It occasionally itches like 1 time a week now.

  14. 15 Anonymous August 1, 2011 at 5:17 pm

    I suggest you stick a cork in both ends! Hee hee! And cleaning it every once in a while might do you some good.

  15. 16 Anonymous August 10, 2011 at 8:07 pm

    On Thursday, August 4th, I had another surgery to complete the fistulotomy (third & most likely final surgery of the year on this!). Surgery went really well. Doctor said this should heal up just fine & I should never have to worry about this again. I feel great! By Friday at noon, I was up & around, doing dishes & laundry, making food. You would have never thought I just had surgery. I hardly have any pain at all and over the counter ibuprofen was all i needed after the surgery. THANK YOU Dr. Smith! I’ll post after my followup appt later this month. ~Becky

  16. 17 Becky August 24, 2011 at 5:03 pm

    Had my post-op appointment today & I have great news! I am healing so well, I no longer have to go back to see the surgeon! My stitches are still in place, but dissolvable & are working their way out. Absolutely no pain/discomfort at all. Today is the happiest day of the year! ~Becky

  17. 18 anon October 14, 2011 at 6:29 pm

    I had suffered from one of the most daunting problem – ANAL FISTULA. To cut the story short I would like to draw your attention towards the non surgical way to treat it. The alopathy docs would sue me for this but I m recovered without surgery using homeopathy. My uncle also had the same problem that started with him 1 week before mine. When he came to know about the similar symptoms he called me to call me back home and take proper medical help from our common family doctor who is MBBS + homeopathy specialist.
    I was lucky I came back home rather than trying to go to any specialist. I took long leave from office and the doc started treating me. He analysed it properly by touching it and then asked me to have patience as it will be painful and will take some time and promised me he will cure in few weeks without any surgery. He actually did. As you know it is filled with PUS and fever is also there. I use to take paracetamol+ ibuprofen 3 times a day..more than that is injurious to health. I took liquid diet and his homeopathy medicines side by side. He used some gel and covered my fistula with some medical cloth. Every use to analyse and change the cloth and put new gel. He actually used one antiseptic which I m sure is 300 times more powerful than detol. It was so strong I do not think we ahve any word in English to describe it. He actually showed me the description of the antiseptic and it was written in the book that it could prevent a surgery. Exactly it did that. After 3 days of medicine and whole procedure my pus was drained 90% and my fever was gone. Next day I could say 100% was drained but the wound was still there and weakness was like hell. I rested completely and followed his medicine and everything, It took my a month to recover and many months to recover completely. When even I think about those moments my goosebumps shoots up.
    I can only thank my doc, GOD and my parents who really helped me during my bad time. It all started with a severe constipation when I tried to excrete with full force. Never do that. If after drinking alot of water or other things can not excrete ..better take laxative one time only(do not make habbit). But never force your anus.
    PS: Homeopathy is a great gift, but problem is only an experienced person can really help. The doc cured both of us simultaneously….same problem same solution.

  18. 19 Anonymous November 21, 2011 at 12:11 am

    not sure whats going on with mine i went for day surgery but when i woke up i was told he couldnt cut where he wanted to for fear of incontince so im left with some kind of elastic band that seems to get bigger up my bum till they see me again in the new year

  19. 20 Steve November 24, 2011 at 5:17 pm

    I’m on my 4th day of recovery from fistula surgery. The discomfort is quite bad. It seems almost worse 72 hours in than it did the afternoon of the surgery – I had joked with my wife that I was going out for a run. I am hopeful that the pain may mean it is healing.
    I have been on Vicodin with mixed results. Sometimes it cuts the pain quite well but also makes me a bit groggy and nauseous.
    There is little discharge. I’ve been showering after bowel movements which I hope is sufficient.
    It is a bad situation for me personally. Tempting to eat comfort foods but may not be best for my bowels. I am physically active and discouraged to be out of commission for what will probably be well over a week.
    I would mostly be interested to know if others have had a sort of delayed reaction with the pain. Taking some meds and sitting quietly seems to be the only way I can feel good.

  20. 21 Becky November 25, 2011 at 3:16 am

    Steve – My first surgery – when a fistula plug was placed – was bad. Had surgery Jan 7th, went back to work on the 18th & probably needed more time off. I had a lot of pain, couldn’t sit properly, which I think came from the stitches that were poking me down there. I used a ‘donut’ pillow to sit on, which helped some. My second (seton placed) & third (seton removed & fistulotomy completed) surgeries were actually a piece of cake compared to the first. Never had to use the donut pillow once. I was back to work in a few short days, and I hardly had any pain. I found that 800mg of over the counter Ibuprofen worked much better for the pain than Vicodin or Percocet. (I’m not sure which fistula procedure you had done.) As uncomfortable as it sounds, have your wife look it at daily to make sure the wound looks good – increased redness and pain could mean infection. Showering after a BM is highly recommended. I’ve also blotted with baby wipes (tucks too, but my 2nd surgeon told me just to use baby wipes as they do the same thing & are cheaper.) I’m not trying to scare you, but I wouldn’t expect increased pain several days after. I’m not a doctor or even in the medical field, but the pain/discomfort should gradually lessen over time. Hang in there Steve, I know it’s an uncomfortable situation, and you will recover & be glad you took care of this. Take Care ~ Becky

  21. 22 Samir November 26, 2011 at 10:32 am

    I am now 70. At the age of 22, I had a bad rectal absess
    which was punctured. After a year or so it developed in to a
    Fistula in ano. This was operated thrice the last being
    35 years ago. Since then there was no complication about
    Fistula but gradually the rectum opening started becoming
    narrower. Now at this age of 70 I find it difficult to
    pass stool. I have to use rectal dialater almost every day
    to extract the stool.

  22. 23 Anonymous December 3, 2011 at 4:05 pm

    Little TMI above! Not sure that pertains to this contemporary discussion.

    I’m almost 2 weeks into recovery. No more Vicodin, just over the counter ibuprofen.
    I’m an active person so this has been quite hard on me. I had the “filet” open surgery with open wound to heal.
    If I am on my feet and too active I feel chafed. Bowel movements continue to aggravate things. Tried a stool softener which didn’t help much.
    I just hope when this I’d all behind me – behind, haha -he that I won’t feel the irritation I used to feel from the untreated fistula. Its a little hard to have a good perspective on it now, as full recovery could be some weeks sway.
    Follow up with dr on Tuesday so hoping for good news.

  23. 24 tom December 29, 2011 at 7:08 pm

    Dear friends
    I got abscess in August 2010, then fistula 4 weeks after that. First doctor put fibrin glue but it did not work, so he prefered me to anothe doctor. My second doctor decides to put seton and let it drains and settle for a while before fix it up. It has been 9 months now, it still draining and I am going it for the third surgery since my doctor believes that there is a pocket of pus develop inside my fistula. this has been going on for 15 months now, wonder if any of you out there get this problem solve, or did anyone actually get completed heal from ano fistula? please reply
    tom

  24. 25 Marco January 17, 2012 at 1:45 pm

    Hi. I developed an anal fistula during the snow storm in October. Two weeks later, I had surgery. You MUST have surgery to cure this! It took 4 weeks to heal and let me tell you, those Sitz baths are key, on top of basic cleaning. Try to use the bath container to sit in as warm water as you can, for at least 45 min, even if it’s twice a day. I noticed an immediate improvement after each time. It also sounds like you may have an infection. The pus definitely needs to drain out! Push for the surgery QUICKLY, before it gets any worse!

  25. 26 loremrn January 19, 2012 at 4:18 am

    My husband had surgery for a rectal fistula 2 weeks ago. His surgeon said that the opening inside had healed itself so he opened up the outside opening more to let it drain and heal. Is it normal to still have it drain quite a bit? He’s currently competing at a regatta and states he is noticing a lot of drainage. No odor and no cloudiness from the drainage. I wondered about packing the fistula with packing strip to see if that would help. (I am a home care nurse). Has anybody had to have the actual fistula packed?

  26. 27 Becky January 19, 2012 at 5:41 pm

    Mine was never packed. Had fistula plug placed in first surgery – didn’t work. Second surgery – had seton stitch placed, third surgery – seton stitch removed & tract opened again to allow for drainage. It drained for a month or so – but heavier in the few days after surgery and very light after that. Your husband might need to take it easy. If drainage is increasing – he might be working too hard.

  27. 28 Ernst January 21, 2012 at 1:15 pm

    I was diagnosed with this, hopefully I’ll have the operation since now I can’t afford one, i’ll be having your shared experiences with this-order, wish me luck 🙂

  28. 29 alex1111 February 24, 2012 at 11:41 pm

    it all started back in october of 2011. felt a lump about 2inches above my anus. it did not cause any pain but i feared it was a tumor or something. went to my regular family doctor and he said not to worry. It’s a clogged oil gland and it will eventually healed. mid november, the damm lump got bigger and bigger. it hurt so much i can barely sit or walk. finally i decided to take matter into my own hand it poked it with a sterile needle. much to my relieve it started draining yucky puss. the pain got much better and abscesss started to deflate. well, a couple weeks later, the sucker start to fill up again and the pain is back. in early Dec, went to the doctor’s office and had it lanced under local anethesia. i thought this time i was finally out of the woods and should be healed in a couple more weeks. wrong!!! the abscess was gone but it left a tiny hole that continuously draining blood and pus. finally went online and diagnosed myself with anal fistula. still in denial about it and read all kinds of horror stories about fail surgeries. i postponed seeing a doctor again until jan 19. he did a 30 seconds anoscope and said i definitely have a fistula. he offered to do fistulotomy with a possibility of a cutting setton. i freaked out, having read that it was a pretty invasive and painful procedure and would leave you incontinent. i told him surgery is my last resort and went home. however, since the visit with this surgeon and his confirmation that i do indeed has a fistula, i started having panic attacks and having trouble sleeping for a couple weeks. i finally called him back and schedule an appointment for surgery. i had the surgery just 3 days ago on feb 21. to my surprise they found two fistulas. both were operated using fistulotomy technique. i’m glad i did the surgery. without it, i wouldn’t know i have a second track. please do not postpone to do surgery. it can’t get worse if you wait. the fistula can branch out and form other tracks if you leave it too long.

  29. 30 Carl February 28, 2012 at 3:40 am

    Reposting this.

    Thanks for sharing your experience. I had my operation a week ago.

    I had fistula for six months because the doctor suggested it will be better to wait for at least three months or more so the fistula tract will form (mature). He said if we take it out early and the tract is not yet hard, there’s a possibility of recurrence cos some stuff might be left behind. It will be best if he can take out the tract whole. So i waited. I didn’t have any pain the last six months except before every drainage of pus/blood. My opening closes for a week then gets filled up with stuff (thats the painful part) then drains. I get pus and blood for a week then I will have a week or two of normal life then there’s a pimple again, gets filles up and drains. That cycle.

    Fast forward six months later. I got the surgery. I am on my second week of recovery. Pooing is painful and 5 minutes after it. Cleaning my a** is a challenge. I use wet wipes and slide it between my butt cheeks. I use like 10 sheets after every bowel movement. I am just paranoid leaving poo/dirt that might infect my wound. I don’t patch the wound. The doctor says it will be better to use pantyliners or diapers. I used diaper the first two nights I got home from the hospital, its so freaking hot. I switched to pantyliners. I do warm sitz bath three times a day. I have this air cushion (small floatie with a hole in the center) so I don’t really sit on my a**. I need to eat lots of fruits and veggies to keep my poo soft.

    So that’s basically where I am right now. Its depressing sometimes cos I can’t poo or sit like normal people but I am telling myself this is almost over. I hope I won’t have any problems anymore after this.

  30. 31 Scott April 9, 2012 at 2:39 pm

    its Monday April 9th 2012 and my name is Scott and I am 53 years old. I was just told by my doctor Dr. Bradley Bute in Melville New York that I need a Fistulotomy. I have never had any painback there at all but i have always felt a pimple like in my ass. I always have had this bad oder and its was always wet back there but i always thought it was from me being a big sweater. I sweat like crazy. I am scheduled for surgery on April 25, 2012 and I am scared to death just from reading all these stories. I am a salesman so I drive for a living and sit all day driving in my car. I am worried about the general anesthesia, about the incontinence, the pain, and of course the healing. I guess i need to buy a few thing before hand like a sitz bath, Baby wipes, feminine pads and whatever else anyone can recommend. I am doing the surgery on a Wednesday hoping to go back to work on Monday but from ALL the stories it doesnt seem like may happen. Anyway I dont know why I have to do this surgery if I am not in pain at all.

    Scott

  31. 32 Becky April 10, 2012 at 3:57 am

    Hi Scott – I’ve been there, was scared about all the reasons you are. Most importantly, do your research, educate yourself, and ask your doctor LOTS of questions. The more you know, the more you’ll be comfortable. Why is the surgery necessary, will it develop into something worse if not taken care of, is the doctor a board certified colorectal surgeon? etc. I’m so happy I got mine taken care of (just wish I found the right doctor the first time cuz i had one wasted surgery) – mine was sometimes causing lots of pain (when it was closed) but as long as it was open & draining, there was no pain. Mine was an endless cycle & not going to go away on its own. As far as supplies – all I really needed was baby wipes and guaze pads after my seton was placed. Didn’t even need the donut pillow I had! I used the small 2 x 2 inch and 4 x 4 inch guaze pads. Baths – I just sat in the bath tub (not right away, but after a few weeks) – but depending on your situation/stitches, you may not be able to sit in the tub right away. Is the doctor putting in a seton stitch? If so, I think you’ll be fine with a Wednesday surgery and returning to work on Monday! Seriously! If I, a 36 year old mother of a toddler did it, so can YOU! I hardly needed pain meds – I used over the counter Ibuprofen. I’m sure you’ll be prescribed narcotics, but if they don’t work, don’t be surprised. Have some ibuprofen on hand if you can take that. My only side effect of the surgery is this……if I am really gassy, I sometimes can’t hold it in. Never had issues with incontinence…but have issues ONLY if I’ve eaten something that’s made me gassy. I haven’t tried to treat the gas with other meds, I just try to be really careful. Doctor said if I still have this problem one year after my last surgery (august), I may have to deal with this always. My fistula had to be taken care of, there was no way around it. But I also had a very long & complex fistula tract – 3 to 4 inches, so the doctor had to do more cutting than a normal fistulotomy and break it up into 2 surgeries. Don’t feel alone! I’ll be thinking of you and hoping your recovery goes well. You’ll do just fine! Have any other questions, let me know! ~Becky

  32. 33 Brianna May 8, 2012 at 11:51 pm

    I’m going in for anal fistula surgery in two days.

  33. 34 Anonymous May 9, 2012 at 1:17 am

    PLEASE LET ME KNOW HOW IT GOES I PUT ON A HOLD ON MY SURGERY

  34. 35 Dave Nichols May 18, 2012 at 1:35 am

    I’m 38 and I’m set for my surgery on May 30th. I’m terrified. (please pardon my spelling I’m not using spell check). I was diagnosed with a fistula in ano in Febuary of this year by my doctor after being misdiagnosed by my previous doctor as having hemmeroids. My previous doctor had me under full Anesthesia three times and operated on me believing I had hemmeroids. I currently have a law suit against this doctor but that’s another story.
    For the last ten years or so I’ve suffered with itchiness, pain and a god awful smell. On bad days it leaks puss, poop and blood. For years I just thought I had a sweaty butt and that the lump in my ass was hemmeroids. As it turns out I have a low fistula in ano. I’ve been putting off the surgery since Feb always finding one good excuse after another. The discomfort and smell has finally forced me to have this dealt with. The doctor has given me full disclosure on the risks involved with this surgery and I have to say I’m beyond terrified. The thought of wearing a colostomy bag for the rest of my life makes me want to cry.
    I work as a Game Warden and my job has become unbearable. Having to hike thro the bush or operate a boat in the hot sun with a leaking asshole is slowly making me go crazy. Every morning before I put on my uniform I have to jam a piece of paper towel up my ass to soak up my daily collection of puss and blood.
    I’m booked in to my hospital at 8am on May 30th to hopefully have this taken care of. Wish me luck…. I’ll write back and let you all know how it went.

    Dave

  35. 36 Becky May 18, 2012 at 2:59 am

    Dave – You’ll be fine! Glad you are getting it taken care of and really sorry you were steered in the wrong direction by the first doctor. Read my many posts above for my story. If this 35 yr. old female could do it, so can you!!!

  36. 37 Dave May 18, 2012 at 3:20 am

    I’ve read all your posts Becky and I appreciate your response. Do you know of any percentage of patients who ended up being incontinent? It’s the one thing that really scares me. If this doctor fucks this up I’ll be out of a job. Can’t really chase down poachers with a colostomy bag full of shit, if you know what I mean

  37. 38 Becky May 18, 2012 at 4:07 pm

    Dave, I don’t know the statistics on that. I suggest that you do some background on your doctor. How many fistula surgeries has this doctor done? Is he board certified and board certified as a colorectal surgeon? Does he have other designations specific to this surgery? My doctor is a colorectal specialist. Here is a link to my doctors certifications.
    http://www.aurorahealthcare.org/misc/lakeshore/doctors/display.asp?ID=8398
    Compare this to your doctor.
    You have to be comfortable and have faith in your doctor. That will ease your mind. I was really scared too ~ and learned the hard way by having surgery #1 with a doctor who didn’t know what he was doing. Then I had to search for a new doctor and found one who knew exactly what he was doing and dealt with it all the time.

  38. 39 Dave May 18, 2012 at 5:47 pm

    My new doctor has been brought in by my hospital for damage control for the doctor who is now on required leave and is being sued, not only by me but by 10 or so other patients. After New Doctor diagnosed me with a fistula in ano(and expressed his disgust with his counter part) I immediately went to another GI doc who gave New Doctor a glowing review. New Doctor graduated med school in the top 2% of his class and stayed on for an extra year to help train students behind him. New Doctor seems to be a man who really cares. I’m still terrified though.
    I’ve been prepping mentally for the last few weeks and have been hitting the gym extra hard getting my body ready for the upcoming trauma. I know this is routine surgery for most surgeons but it is still nerve racking for me and the stress is affecting my work and my family so I’m looking forward to have this all behind me. Yes I said ‘behind’.
    I’m big into working out and taking care of my body and the true irony of this fistula is that when I’m hitting the gym really hard and taking all my supplements is when I leak the worst. I always thought that if you ate right, worked out, didn’t smoke or drink too much you’d be alright – this has hit me out of left field.

  39. 40 Dave May 18, 2012 at 11:45 pm

    Hey Becky how is your healing going now?

  40. 41 Scott May 20, 2012 at 10:24 pm

    Well I never went through with my surgery. I dont understand if Im not in pain why I need to put myself through something like this. I lived with the sweaty ass which I always believed it was from me just being always hot and I dont have an oder only when I work out in the gym.

    I will wait until its very necessary from some sort of pain which I never have. Or I will call the doctor which I have been avoiding and ask him what he thinks I should do.

    Anyway I will keep you Dave & Becky informed if there are any changes. Good luck Dave and let me know how it goes. Your a better man than me.

  41. 42 Dave May 20, 2012 at 10:41 pm

    The very scary down side to a fistula is that it can lead to anal cancer. I’d get it taken care of Scott.
    I’m not looking forward to May 30th but I’d hate to have my asshole drop out with cancer in ten years and have to deal with radiation and cemo and probably death. A couple of weeks on my stomach with a minor pain in my ass beats cancer anyday.

  42. 43 Becky May 21, 2012 at 6:28 pm

    I am completely healed. A few side effects from surgery though that I mentioned earlier. If I am really gassy, I can’t always hold it in. When I feel the urge to go #2, I need to start locating a restroom & make my way there. There is a shorter window of time from feeling the urge to needing to go. I manage this by taking fiber pills and staying as regular as possible. I also watch what I eat & avoid things that will make me gassy.

    I had a very HIGH and LONG fistula – therefore required two surgeries and prob a little more cutting than the ‘average’ surgery. That’s where I think these issues came from. (My doctor told me he couldn’t repair it in one surgery, if he did, I’d be incontinent for life.)

    My doctor told me that if I still have these things happening one year after my last surgery (which was in August) then I will probably have to deal with this forever. In no way has it consumed me or taken over my life. Just a new way of learning/thinking on my part as I work to manage the issue. It’s really not a big deal.

    I talked to my doctor about this leading to cancer last year cuz it was a major concern of mine and he told me a fistula alone cannot lead to cancer. If you have other bowel issues that cause fistulas, you could be more at risk for cancer. Again, this is what my doctor told me, I’ll do more research to see if I find other information. I am a little concerned about your comment Dave – which will lead me to research further.

    I hope this helps, that’s why I continue to follow this blog. It’s a ‘special’ issue, and there are not many people who want to talk about it and not many people even know anything about this.

  43. 44 Dave with the bleeding butt June 13, 2012 at 5:19 am

    Well the deed is done. Had my surgery at 8am today and I’m lying in bed at home on the road to recovery. Not in that much pain but I am on some heavy duty pain killers and I have a very loving wife who is treating me like a king. I couldn’t imagine doing this without her caring for me. I’m not very excited about the morning as I’m sure I’ll have to take a dump and I can only imagine it’s going to hurt like hell.
    The procedure only took about an hour. I was completely under – thank God! The doc said it was one of the easier ones he’s done and I should heal fairly quick. My fistula was low and there was no complications during surgery. I had the lay open procedure and if all goes well I should be healed up in about two weeks(work thinks it’ll take a month lol). I’ll keep ya’ll posted and if I feel up to it I’ll post some pics.

  44. 45 Dave June 14, 2012 at 6:52 pm

    Still in bed and layed up. Painkillers are doing their job but not much sleep since I’ve been home. I’m doing my sits baths about three times a day but I haven’t pooped yet. I think the trauma from the surgery has scared the poop out of me – I also haven’t eaten very much. Couple of bowls of soup and some juice from the juicer. I took a look at the area that was operated on and I have to say it looks pretty gnarly. About inch and a half long and about half and inch wide just below my butthole. Like I said I had a low tracking fistula so the procedure was pretty simple for the doc and it was less invasive for me. The pain comes in waves but it’s pretty managable with some vicodans or likewise. I know I’m only a few days into recovery but I can already feel a difference – my ass has been itchy for the last decade or so but since I’ve been home not a single itch. I’m so glad I had this done as the doc told me again that chronic infection(as in fistula in ano) over years can lead to malignancy. Scott if you’re still reading this I really suggest you re-book and have it done – you’ll be happy you did. Hope you are all well and fistula free. Thank God for surgeons

  45. 46 SCOTT June 14, 2012 at 7:22 pm

    Dave

    You were right I read everything that you post. I still have not had it done. I don’t want to since I am in NO PAIN at all. It doesn’t really bother me so why should I go for elective surgery. Reading all these posts scares the shit out of me. I drive all day for a living and couldn’t see myself being out of work for a few weeks. Maybe once the winter comes I will have it done.

    I am soooo glad Dave that you are doing great. You are a trooper and I hope your healing will be fast. It sounds like it will since you said it was kind of small.

    Scott

  46. 47 Becky June 14, 2012 at 8:37 pm

    Dave – glad to hear you are doing ok. You’ll be up & around in no time! Everyday gets better.

  47. 48 Dave June 19, 2012 at 1:12 am

    Dave here – End of day 5 after my fistula surgery and the pain is catching up with me a bit. Doesn’t really hurt to poop like I thought it would but the ache coming from my opening is pretty unrelenting. I was back on my feet fairly quick after surgery and I think I’m paying the price for it now. I’m back in bed and back taking the painkillers. I hate the way the meds make me feel but it’s a nice relief from the ache. I took a good look at my wound today and it still looks fucking gnarly. I feel like a should have it repacked with gauze or somethng but the doc and all the pros say to leave it open and keep it clean. I take about three sits baths a day and am really careful about keeping it clean after I poop. I was gonna post some pics but I’ll let ya’ll use your imaginations. Just think gapping wound in my rectum and you have the picture in your head. Ya Scott if this is gonna affect your work I’d suggest you wait until you can get a month off to recover. I drive a lot during my work day and there is no way i in hell I’ll be ready for work for a least a month – I’ve got a medical plan that allows for extented sick leave with full pay so I’m blessed(and grateful). I drove my brother to the landfill today with some garden trash and after 20 minutes in the truck I was wishing I hadn’t left my bed. Sitting in a truck/car for extened periods a week after this surgery DOES NOT work. I’ll keep posting until I’m healed. Make no mistakes though I’m really glad to have this done and I’m looking forward to having my life back and not being consumed with tending to a leaking butthole.

  48. 49 Trey June 20, 2012 at 6:13 pm

    Im 36 now and been dealing with this fistula from 1998…I was very young…living my life care free out going boy. Loved life and was very popular. Then Hell came to me in the form of this. I knew nothing about this Fistula and more information needs to be out there and no medicals Insurance. My first surgery was done in my opinion by inexperienced and uninformed general student surgeon in Los Angeles,CA they sent me home all cut up with what i thought was pain meds,come to find out it was just antibiotics. Over the years over 8 surgeries and differnt procedure I kind of just been going with the flow on what ever the Dr say for im kind of over it now. I’ve been in a huge depression and pain has been my companion. The way I feel about myself and body has changed dramatically over this time. I felt so alone and could never find myself talking toanyone about this. I searched on line years ago to find some form of support group but really no luck. Now I find this group. I now live in Indianapolis,IN and the doctors are ok but they pretty much say I have to live with this for the rest of my life. I try to stay positive and some of your post have made me cry buckets of tears. Im glad I might have a chance of healing like some of you. To sit like everyone else. No MORE PAIN, Not feel like I have a tampon between my buttcheeks. Not worry if I have a strange odor that anyone can smell. Go out on a date and think hey I might have sex..and it do happen cause I dont have the ugly nasty wound spilling pus on them..and I could wear white again..lol im so glad im not alone thanks for this web site!

  49. 51 Dave June 21, 2012 at 3:05 pm

    It’s been a 8 days since my procedure and I have to say I’m doing very well. I healed a lot quicker than I thought I was going to. My wound still needs to be kept clean after I poop but there is no pain at all(except if I plop down on the couch or bed, that creates a little strain on my opening that can be uncomfortable).
    Very, very glad to have this behind me!! I’m fistula free! The weeks leading up to my surgery I made sure to hit the gym and eat lots of leafy greens and water water water. The last week I’ve been jucing everymorning with lots of leafy greens and fruits. I’m sure this is why I’ve healed so quickly. I was expecting a long recovery but it looks like I’ll be back at work on the 28th(thursday). My next doc visit is on the 26th and I’ll let ya’ll know how that went.

  50. 52 Becky June 22, 2012 at 12:08 am

    Awesome news Dave! Keep up the good work!

  51. 53 Dave July 1, 2012 at 2:36 am

    And that’s all folks! I went and had my last doctor check up on thrusday at noon and he was really happy with my progress. He said I’m healing fine and that my opening has closed up nicely. To be on the safe side I asked him to have until July 10th off from work as my job can be strainious at times.
    I can’t believe how much better I feel! No more leaky butt, no more paper towel jammed up my crack to soak up puss and blood, no more smell or discomfort. Fistula free! I can’t believe that I suffered for almost 15 years with this pain in my ass now it’s gone. Poof!
    Totally worth all the misdiagnoses and all the bullshit I went thro to get here. I feel like a free man!
    Dave signing out. Peace.

  52. 54 Jay July 9, 2012 at 6:54 am

    hello everyone..I had my fistula surgery last thursday..I am super paranoid and depressed.. I had no idea what kind of surgery It was.. all I thought I was doing was just cutting the abscess open then stitch it up and would be fine within a few weeks but I ended up getting this damn ring in the middle of the wound and got this long wound wide open..and the doc says I will have to have another surgery a few months later..now I know why It is not stitched up after reading some of the posts up here..I am a professional dancer and I have to cancel all my shows this summer..and also I am a gay male..so…I am…very much worried about the scar as well as the possibility of this thing coming back..I haven’t seen many posts about the scars..is the wound ever going to close? what kind of scar is it going to leave? how long does it usually take for the wound to close and heal completely?…

  53. 55 Anonymous July 11, 2012 at 12:46 am

    Hi Jay, after my third and final surgery, I was given the ‘all clear’ after three weeks. Doc said I was healing so well, no need to come back. It still took some time to close up, but I honestly don’t remember how long. I hope you get to a point where you are glad you had it done. It was such relief for me. I do have quite the scar, BUT, I also had a very long fistula tract. Normally they are only 1/2 inch away from the back door and mine was about 3.5 inches away. My issue was prob rather unusual because I went to an idiot doctor at first. So if I didn’t go to the idiot, and only the qualified Dr. The timeline would have been – Surgery April 21, Surgery Aug 4 and healed by Sept 15th~ ish. I was told if a person has chronic condition such as Chron’s diease, they might come back. Without other issues, prob won’t come back.
    Take Care & Heal Fast! Becky

  54. 56 Jay July 11, 2012 at 1:35 am

    Thank you for your reply!.. not to be annoying but..can you describe the scar a little bit more? mine is pretty far from the hole too so I have a long cut. does the scar look like just a flat line from a cut? how long did u have to wait to get your second surgery after the first one?.. u said April 21 and Aug 4..so it took 4months to heal to get the second surgery?.. I’m sorry I am way too paranoid about this whole recovery..and I can’t talk to no one about this.. and my doctor only tells me that the healing process is totally depending on the person.. but it cant be like someone heals in 3months and someone heals in 2years.. Im trying to gather the information so I can schedule myself accordingly with my work and trips..I do alot of traveling..so yea..it would be great if you can tell me alittle bit more about how the scar looks after its completely healed and how long it took your wound to close up…. thanx…

  55. 57 Bobby July 29, 2012 at 7:08 am

    Hi Guys, particularly Becky! I posted here last year when I was diagnosed, and went throught two surgeries. The first turned out to be a seton stitch, the second a plug. I did have delayed increased pain after the second surgery. I believe from how it felt to be more related to bruising or trauma of the surgery than the fistula or plug itself it that makes sense? Anyway after three week the plug or part of, came out. The surgeon said there was a chance part was left in and so we decided to wait and see. This was a year ago. Every now and then i get a twinge of pain, real sharp, for just a second or two then goes. Twice I have returned to my family doctor for any biotics due to some pain and swelling. Apart from that there’s been no more discharge, and at first glance you can see nothing down there. I have no clue if it’s gone for good, or not. For now I am thankful for being pain free, and trying to keep a healthy diet to keep things moving! Best wishes to everyone going through this, and really glad to know things ate turning out well for you Becky 🙂

  56. 58 Anonymous August 4, 2012 at 9:14 pm

    HI Jay – my scar isn’t so bad. It’s flat, about 4 inches long. It’s lightening up a bit, almost matches my skin color. You are right – I had surgeries April & Aug. I was fully healed by October probably, I really don’t remember.

    Hi Bobby – The plug surgery was horrible for me (1st surgery). The seton stich surgeries were a breeze compare to the plug! I hope you are healed completely and remain fistula free!

    I wish you the best of luck!
    Becky

  57. 59 Anonymous August 4, 2012 at 11:13 pm

    I had a seton about a month ago and the doctor says he doesn’t know which surgery he is going to do for the second surgery yet until he sees the inside.. he did say it could be plug..or flap..or something..I really don’t understant the difference to be honest but I’m seeing many people say the plug surgery did not work and was painful.. I wonder why and how many people here who have had to get 2surgeries for one fistula got a succesful result? after just the 2surgeries? because I’m also seeing alot of people with that case say it came back.. if it did, did it come back during the recovery time after the second surgery? or the second surgery was completely healed?

  58. 60 Nina August 8, 2012 at 3:04 am

    Hello all – It’s somewhat comforting to see that others have gone through similar horrific fistula experiences.

    I lived with an extremely painful and debilitating fissure for a couple years after giving birth to my first child. I had it “fixed” surgically two years ago and thought it was all a bad dream of the past. Then a few months ago, I noticed a painful bump in the same area which I wrongly thought was a hemorroid. When it came to a head and errupted, then I thought perineal cyst/ abcyss. When the pain and pus drainage didn’t go away after several weeks, I went in to the same surgeon who had helped me before. He told me it was a mature fistula and promptly removed it. A week of pain and meds ensued. But I did feel much better.

    Here’s my question: It’s been a month since the surgery and it still feels sore down there when I am sitting (like in the car or a meeting). Is that normal and please tell me it will go away… I have to sit in these meetings and I have to drive my car to work as I live in a country side where public transportation is not a feasible option.

    Have you all had this kind of soreness after sitting/driving for more than ten minutes and does it eventually get better? I hate to have to explain to everyone why I always need a cushion, don’t want to drive far, etc.

    Any responses will be very much appreciated!

  59. 61 TonyHappyAss September 22, 2012 at 2:41 am

    Hey everyone! This blog has been super helpful in the weeks leading up to my fistulotomy. I just had my procedure today and thought I would share my experience thus far.

    I initially was referred to a specialist by my GP because I thought I had hemrrhoids. A few years back I went to another GP who gave me pain pills and anal suppositories. I don’t know if at that time it was a fistula or not.

    So two weeks ago I see the specialist expecting to be subject to those hemorrhoid rubber bands. But he said I should have seen him a long time ago. There was a large skin tags and an abcess which lead to a fistula. During the exam he saw internal hemmrhoids too.

    So he booked me an operation 2 weeks out and I had it today. FYI, I am 34 and only ever had my tonsils out. I am a big guy but relatively healthy otherwise. The nurses kept referring me to having a full work up because I had 5 procedures including the draining of abcess, fistuolotomy and internal hemmroids (not sure what the actual procedure for those were).

    But overall it hasn’t been bad. I am about to take my first sitz bath. Doctor suggested water only no epsom. Also the nurses and doctor said to have an all fiber diet the next few weeks. That means fruit, veggies, salad, cereal with silk milk (soy) and lots of water. I have pain pills prescribed but they constipate you and if I can deal with the pain that’s better.

    Right now I haven’t take off the original dressing and it’s about 7 hrs post op. But all I have is a strong ache in my ass. I am able to pass gas frequently and without pain too. I am just waiting for pain, but as of right now th fistula itself was way more painful.

    But I feel an ache at the bottom of my testacles. Any other guys have this?

    Thanks again for the support. Also to the original poster of the blog, this is the best site I found on the net. I don’t think you understand how helpful (especially from an emotional standpoint) this blog is.

  60. 62 dan December 20, 2012 at 3:56 am

    Hey I was diagnosed with a low, shallow fistula. My doc is going to do a fistulotomy on me. I am confused by what I have been reading online, as some said it’s very painful post-operation while some said it’s not painful at all. I understand that each individual is unique and probably the severity differs. However, my condition seems to be similar to that of the original poster, so I guess I can anticipate only mild discomfort post-operation? I just can’t help thinking about it as I will need to travel (no extensive walking) two weeks after the operation. Thanks for any info 🙂

  61. 63 becky December 21, 2012 at 1:57 am

    Hi Dan – You are correct – many factors here. Pain tolerance, type of suregery, etc. My first surgery (the plug) was terribly painful. Couldn’t sit without a donut pillow for weeks – I had stitches right at the opening of my anus, and to be quite frank it felt like a needle poking me in the ass everytime I sat. So I ended up leaning to one hip or the other. My 2nd and 3rd surgeries – the seton stich – hardly needed any ibuprofen at all, could sit properly immediately. It was a breeze compared to the first surgery. Certainly expect some discomfort, it’s a sensitive area.

  62. 64 MBC January 7, 2013 at 9:17 pm

    Wow. Some interesting stories here. Mine started about 5 years ago when sitting in a chair (usually at my desk) became increasingly painful. I put it down to a damaged coccyx as I played polo quite frequently. After about a year, I moved from the UK to UAE and whilst there, noticed what felt like a spot. I wasn’t concerned about it but just knew it was ‘different’. As the months went by, the spot became larger and the pain more continuous. I just put it all down to piles and tried to live my life. After a year, I moved to Argentina for 6 months to continue with my polo love affair. This must have been one of the most painfully excruciating times of my life! I was continually dosed up on regular Nurofen which did fuck all to be honest! The ‘spot’ would fill with puss/blood and occasionally burst to my joyous relief. I was also stuffing a piece of tissue up my crack to soak up the moisture I was experiencing. This continued for a further 3 years after I had returned to the UK. I had an MRI on my coccyx which did not indicate any trauma, and also had a couple of rectal manipulations to it. Nothing worked. By now, my girlfriend was becoming very concerned and jumped on to Google. Somehow, she managed to find something about fistulas as my previous GP had mentioned it. Despite my new GP not being able to diagnose the fistula, she sent me to see a top colorectal surgeon (who is also the director of colorectal cancer for the whole of London so very highly qualified). Within minutes, he had diagnosed me as having several fistula! I had an MRI to check this and the results were consistent with his findings. At the second appointment, I took my partner with me and she asked additional questions to my own. We both left thinking he was the best person to perform the op (having carried out hundreds of procedures) as I am shit scared of that sort of stuff! I had my op on the 4th Jan 2013 (3 days ago!) and everything was a major success. Pain is negligible but I have felt a little spaced out/nauseous for the last couple of days which might be from the meds? Wounds are healing up nicely according to the nurses (I’m having daily wound checks) and I’ll be seeing the surgeon again at the end of the month to make sure everything is fine. I had two fistulas laid open, one being a high fistula, two minor fistulas dealt with and have a seton stitch in place. For the first time in over 5 years, I am able to sit without being in that awful debilitating pain and look forward to being able to get back on a horse again! The problem with this condition is 1. its location (no one likes bending over in front of a doctor and having things shoved up their arse!) and 2. lack of education/information on fistulas – 99/100 people will assume it’s a haemorrhoid! All I can say is, should you have any issues down there, go and see a doctor asap – my experience could have been cut short many years ago with a course of antibiotics to treat the original infection before the fistula/s occurred. As of yet, I have resisted the urge to look at the wounds!!!

  63. 65 Anonymous January 8, 2013 at 1:58 am

    Dave here. Had my surgery in June and all is well. Should’ve done this years ago!

  64. 66 bobbi January 22, 2013 at 5:32 am

    just had fistulectomy surgery jan 18, 2013. Surgery is virtually painless, the i.v. Insertion is the worst part of it. My fitsula tract was removed, stitched and filled with fibrin glue. 2 hours after i got home from the hospital, same day surgery, i was right back on my feet with less pain then before i went in for surgery. I feel great! Bm isnt painful at all afterwards. Will have minimal bleeding first 2 days after then pink drainage for few days which is normal. Will have slight odor due to blood n location. Do ur sitz baths if dr orders and keep area clean n dry if possible. If ur a smoker my suggestion is to clench your rectal muscles to serve as a splint to ease rectal pain during coughing n protect from dehesence. Dont be fearful if your surgeon suggests surgery, not as bad as it sounds. Good luck God bless

  65. 67 Dan January 24, 2013 at 2:25 pm

    Well so I had my fistulotomy today- painless during the surgery (well of course), a bit sore (1.5-2/10 pain scale) after I woke up. I am feeling alright now, hopefully it won’t be painful when bowel movement and peeling off the dressing comes tomorrow. Not in pain but feeling a bit sucky as I had to admit and discharge myself, and the medical team was not very good (no one told me how the surgery went, how’s my wound etc.; nurses could have been friendlier). Oh well I guess it’s just life. Will keep you posted on recovery 🙂

  66. 68 Dan January 25, 2013 at 7:09 am

    Had my first bowel movement after operation- not painful at all but there’s some minor bleeding which I guess is normal. Did my sitz bath and shower, I am still essentially painless (well I am still taking ibuprofen but I don’t think I need to anyway). My wound is about 1 inch in length and not too wide (actually it is more like a narrow slit). The surgeon is a colorectal specialist so I am hoping that my case is just less serious and not because the surgeon screwed up. Anyway if you are bothered by fistula, go and have the surgery,it is not worth the inconvenience/mental stress 🙂

  67. 69 Dan January 29, 2013 at 6:04 am

    Day 5- still some bleeding after bowel movement, hope it is normal. Other than that, I can sit and walk alright now, but trying not to. Hope I will be over this soon.

  68. 70 Abbas January 29, 2013 at 3:47 pm

    Hi,

    Names Abbas, based in Tanzania…Finally found a place to share!! No one to talk to!!

    I had an abscess sometime in September and the Doc I went to didnt give me antibiotics, needless to sayn things went south after..

    I had a recurrent abscess in the same spot very close to my anus for two months, couldnt do anything as it would hurt but it would burst the next day, cycle would repeat every two weeks..

    Had three off courses of antibiotics, and dropped my pants in front of at leat 5 doctors..one surgeon suggested surgery the very next day, diagnosing my condition as a fistula by just poking around with his finger for less than a minute, I literally ran out of his office..

    FOund another surgeon who scheduled the surgery and then decided against it as the antobiotics seemed to have worked…

    Life went on until December when the openinng would leak almost every day….Come January I went to see my surgeon again and had the surgery scheduled after an MRI which didnt show the fistula, but he said we might as well take it out..

    Surgery- a fistulectomy- was done on the 18th of Jan and apart from a lil bearable pain for the first night, I havent had any pain to speak off… The surgeon had to leave a seton in place which has since removed so as to not damage the sphincter…

    Healing seems to be coming along well, I sit in a sitz bath 4 times a day(got off from work)..had a massive scare today though, had a small boil in the area and the surgeon just took a blade to it and said its superficial, so lucky break…I still dont know why the boils are happening, have been checked for every possible disease that might cause the boils but am absolultely healthy..

    So yeah, bought more comfy boxers,going to keep the area incredibly dry as I live in a hot country, so prob part of the cause…

    The physical pain isnt so bad compared to the mental exhaustion, add to it I am gettin married in Easter so its not been a pleasant experience..

    I donk know if anyones gonna read this, but it feels good just writing about!

    Ps bowel movements are fine, aided by stool softeners the first few days,and am on nothing for now.

  69. 71 Anonymous April 24, 2013 at 4:56 am

    Hi guys,
    Im new here… my thoughts are with you all. Im glad someone made this site.. its really a big help…. because for me it seems like no one knows exactly what we are going through even our Surgeon.. So depress with all these experience and i always say i better die than go through with it, its the most scarry for me.
    I always have a battle with my health.. Im 32yr old female by the way , I always learn to accept that maybe just maybe its my fate… I cant have children of my own. i cant have sex , i have hormonal problem… always deal with infection.. UTI , tonsillitis and fever seems to love me since i was a child I had Hernia operation when i wast just 1 & 6 months old. I had skin problem But i never complain and learn to adjust and accept that maybe its my fate, i always motivate my self that as long as i can walk, talk, I can see, i can eat , hear and Im alive i should be grateful.
    But now is diffrent as i remember it starts last year JULY 2012, abscess develop just between my buttocks its seems minor to me, after draining puss and take some antibiotic. and i thought thats the end of it.,
    . After 3 months it seems to reoccur, i had to visit like 3 different GENERAL SURGEON. i had first surgery under ( local a) they called it SINUS TRACT after 4 days it become swolen and my surgeon needs to remove the stitches.
    I decided to see COLORECTAL SURGEON he is the President of COLORECTAL specialits in my country, i did my research about him,,,wink,
    just to make sure..Im in denial when he says its fistula in ano… and need surgery.
    I had fistulectomy and partial fistulotomy on 18 MARCH 2013, my CRS seems to know what he is doing and im so grateful for it. April 2 i saw him and he says its doing ok and healing from inside out,, Im grateful, thankful and hopeful that its the last time i will see him.
    but now its reoccuring i dont kbow what to do and what to expect anymore. even though im still hopeful and optimistic. I can’t sleep or eat properly thinking puss still continue to drain in my 2nd hole of my ass… .
    BTW this SURGERY cost me a fortune..
    Reading all your stories make me feel strong and be more patient. Hoping to hear a good news from my CRS my next appointement is on 2nd July 2013.
    TIPS :
    Please buy sitz bath and anal spray to clean the area.. and standby more pain releiver..

    .

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  71. 73 tom phan June 28, 2013 at 3:12 pm

    Dear Dave
    i had this fistula almost 5 years now, been through many surgeries and not healing yet. i dont know if it is about my surgeon but would you please give me the information about your surgeon so that he can fix me?
    thanks
    tom

  72. 74 Santanu Jana June 29, 2013 at 2:40 am

    I couldn’t believe when the anorectal surgeon in London confirmed me through an MRI that I have to go through an fistula operation as I have one in ano. I had no pain and no bleeding before but I felt slight discharge though and suddenly one day a bit of pain which prompted me to see the doctor.
    More surprising was for me the fact that there is not much treatment apart from surgery.I was desperately looking for alternatives and I saw a website which talks about alternate treatment without surgery but not available in london and when I discussed with my surgeon told me he even told me that he is not aware about any alternative to surgery.

    I took a risk and I travelled to India in Kolkata and discussed with the doctor who provides alternative to surgery and here is what I am offered..

    My treatment is divided in two parts as I came India only with 3 weeks which is not enough for the treatment. The total recovery by this process can take 8 to 12 weeks.

    As first part of treatment, I have gone through a minor surgery to place a silk seton and I am back to London.

    My next part of treatment requires 8 weeks and I am planning to go to India in September.

    The doctor wants to change it to medicated seton which will cut and heal the fistula track. He estimated that this process of changing the medicated seton is required every week for 8 weeks for me which will completely heal the track.

    I still don’t know whether I have taken the right decision but I have to wait till I am completely cured. I will keep you posted on my progress.

    I am 37 year old male living in London.

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  77. 79 Rob October 5, 2013 at 10:17 pm

    I’m not even sure where to begin. I have a nurse practitioner who I trust completely. She’s been so kind and answers all of my questions at great length and I trust her more than I’ve trusted anyone, medical field or not. The diagnosis at this point is a fistula and I have an open wound about the size of Texas at the moment, but I’m having a problem with the constant weeping and even more bleeding so with keeping with the wetness I try and clean and dry the area about a hundred times a day, kidding, sort of, because the skin gets so irritated. I’m in so much pain when I need to use the bathroom I could almost start crying thinking about what I’m going to have to go through and more anxiety knowing I’ll need to take a shower. I’m taking hydrocodone and it does help but it’s not the pain free aspect of it I expected. In the mean time while I’m trying to decide about surgery or just living with it until I die, but I can’t find anything like a chux pad that’s in a decent price range and in an 8 x 10 size. Any ideas? I’m open to suggestions.

  78. 80 Dave October 6, 2013 at 5:09 pm

    Hey Rob this is Dave and I’ve posted several posts on my experience. Just one thing – get the surgery. I’m over a year post op and I still laugh and smile when I think of my life before the surgery. I was miserable for over ten years. The weeping, the bleeding, the smell… I used to have to jam paper towel up my butt in the morning to soak up my daily supply of puss and blood. Needless to say I’m paper towel free these days. The surgery changed my life on a cellular level. I can ride a bicycle again, hike with my wife, not worry if my partner can smell my butt(I work in law enforcement)…. Too many to try and type out on an iPhone…
    Don’t hesitate get the surgery!!

  79. 81 chuck October 31, 2013 at 2:05 am

    Hi everyone!

    I went to this site when I found out what I had was an anal fistula. I was so scared after reading comments from others that were suffering enormous pain and also the fear of incontinence. I want to thank the creator of this blog and everyone’s input, it helped me to deal with this and know what I was in store for.

    Here’s my story so far…

    I am now six days into recovering from surgery. I haven’t had any pain really only discomfort but I do have a very deep wound that is healing ” open”. My wife has been putting cream in the wound after every sits bath which I do 2 times a day. I attempt to do a bowel movement before each sits bath and after the BM I shower and clean the area then do my baths.
    Since I need more water in my bath than the solution calls for I stay in the bath 45 minutes instead of 30. Today though, I did have a bad experience that was my fault but i hope it’s no big deal. I had to put the medicine on the wound myself as my wife was working late. I attempted to do this w/ a mirror and lifting my leg up and supporting it on my 2 foot high bath tub so I could see the wound while applying it. Bad idea. I then began to bleed, a good amount. It stopped eventually. I called the doc and he said not to worry and good thing is that I have an appointment w/ him tomorrow anyways. I hope it’s no big deal. I only felt slight discomfort when washing my bloody butt up. I am now waiting for the wife to come home and I’ll shower a new and get the medicine applied.

    the surgery was a good thing and I just need to be patient. No major pain but i think everyone’s case is unique…. I can’t wait to have this thing all healed and well.

    The wife just got home so i have to run but for everyone reading. Don’t worry unless the doctor tells you that it’s a big deal. Mine was calming me and he was right on everything so far. I’m glad this will be over soon, the surgery was the right choice.

  80. 82 Rob November 8, 2013 at 12:50 am

    Hi, I went to have a ct scan of the pelvic area and had to drink somethathing that would make me glow inside and they found I don’t have a fistula, so no one knows what it is. I’m still in a lot of pain and if I’m not just draining then I’d continue to bleed. I don’t know what’s causing this exhausted feeling. I’m get sick of complaining so I’ll head out. Take care!
    Rog

  81. 83 Rob November 8, 2013 at 12:51 am

    Rob I meant….lol

  82. 84 igrik December 19, 2013 at 11:19 am

    There is certain discussion on-going regarding fistula’s and setons on anal fissure support forum. I didn’t suffer it my self, but just would like to express my frustration on terrible condition I suffered for already 8 months, after hemmie excision. Tremendous help and support I found on board http://anal-fissure.org

    I have shared my story there

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  85. 88 Ari January 31, 2014 at 3:41 am

    Hi I’m 15 years old and I got an supralevator abscess,
    Which later became an intersphincteric fistula. I’ve had 4 surgeries done in the past two months. The last one I had was to put a draining seton in and I’ve had it for about two months now. My colorectal surgeon said I’m ready for the advancement flap surgery so I’ll be doing that soon. I am able to sit down in an upright position but it hurts when I lean back in a chair and I can not sit on hard surfaces. I was just wondering will I ever be able to sit like a normal person or will my butt be sore for a long time? I really want a response because I miss being able to sit in any position without pain

    Thank you for your response

  86. 89 Anonymous January 31, 2014 at 8:00 pm

    Hi people, i just read your stories and i want to thank you very much for these information. Im 21 and had a lay open surgery 3 months ago and the dr said it will gradually heal after 1 month but the puss is still oozing and im still on huge amounts of anti bios and other meds.
    On the other hand, my fistula is not that big its like a size of a peanut. I dont feel any pain. But the pain is like a hell after i go to the toilet to shit.
    Any comments on my situation? Plz help!!!!😭

  87. 91 etjeffchi February 11, 2014 at 4:00 am

    Anyone still updating their stories????

  88. 92 Dave Nichols February 11, 2014 at 4:15 pm

    Hey I’m Dave and I posted a few times on here. I had my fistula surgery in June of 2012. I’m coming up to my two year anniversary of my surgery and there are still days when I smile and think of the misery I used to live in. I had a low track fistula-in-ano for approximately 15 years. After years of suffering with pain and smell I had a successful surgery with ZERO complications and 100% recovery. My wound healed without infection and only medium pain. I have my life back. No more smell or discomfort. I can ride a bike again… If you have this infliction and are thinking about the surgery, DO IT! Words cannot express how much better my life is after getting that thing cut out of my asshole. LIFE IS GOOD.

  89. 93 Anonymous February 15, 2014 at 5:12 am

    Hey Dave! Good to hear ur healed! I had my surgery a week ago. Hoping i wont have any complications as i got the abscess/fistula from childbirth. How long was your recovery period???

  90. 94 Richi March 4, 2014 at 11:14 am

    Hi my name is Richi, i had my fistulotomy last 19th February 2014 and i could say that everything is going well with my recovery. I had my anal fistula for almost 5 years and im so happy that its already gone. But recovery time is really taking a lot of patience and care. I am working overseas and i dnt have any family member with me here so its really hard for me during this time of my life. But i need to be strong for myself and for my family back at home.
    During my my follow up check up last dated 25th February 2014, my surgeon only ask me to continue drinking my medicine that helps to soften my stool..he stopped giving me antibiotics and or pain reliever medicines.
    I keep on having a hot sitz bath twice a day for 10 minutes, morning and evening and everytime i passed my stool. I only using betadine and gauze to cover the open wounds.
    I will having a follow up check up again on the 12th March 2014 and so far so good for me.
    I hope for a fast recovery so i can go back to my normal life. 🙂

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  92. 96 Chibo March 26, 2014 at 8:29 pm

    Hi anyone still updating???? I had my fistulotomy feb 6. I will be having another one on april 09 since my colorectal surgeon said there is still a small opening. He wont tell me if its healing or not. He doesnt think that its a fistula but maybe a sinus tract. But in order for him to confirm it is to do another surgery. Im so frustrated and at times its really depressing. I thought one surgery is enough. ;( wish me luck guys!!!!

  93. 97 Anonymous May 13, 2014 at 12:10 pm

    I got yhe

  94. 98 Anonymous May 28, 2014 at 6:15 am

    Yes, I am here too because I got this pain Ina**

    It was late-March this year, when I noticed the lump down at 12o’clock position. Went to the doc after 3-4 days who did not have the courage to see it, good I clicked it before going to this general physician. He immediately said after seeing the pic of the my a** lump that it’s external hemmorhoid. He prescribed some hemmorhoid/piles ayurvedic meds along with some other meds. It seemed it’s healing. Had to travel long distance at that time to attend a friend’s marriage. Came back and the situation got kinda worse as it was oozing and quite discomforting. April month gone! During the last leg of April and some part of May, got fever, cold, cough which I think was unrelated.
    It was May 23 that I decided to see a surgeon near my area. Called up the surgeon, met him same day in the evening and was diagnosed fistula in ano after he examined by putting gloves on examining by fingers carefully. Surgeon advised fistulectomy. I had asked questions that came to my mind about healing, fee, etc. I didn’t have enough money to perform it the very next day. Sold a gold chain for it! Called up the surgeon within 2 hours that I am ready for the surgery tomorrow! It got scheduled along with some blood test, preop.

    Now, I am fourth day post fistulectomy and completely resting, taking medicine, using betadine for sitz bath, laxatives.

    Hoping for a speedy recovery.

    Thanks for this blog where I could share my story.

  95. 99 Anonymous May 28, 2014 at 7:47 pm

    i hope a speedy recovery too my friend. i was diagnosed with chrone’s disease in my small intestine last year but thx god the infection is in a small area and i was bale to control it with medications.. after a period of 2 month i felt something strange near my anus. and it kept hardening and getting bigger daily.. i called my doctor and told me to go to ER ASAP. the next day my Dr came and looked at the area and he said its an fistula and needed to do a fistulectomy.. . from my experience with this, you will feel no pain after a resting period of 1-2 months.. but be careful with the area and try keeping it clean after each stool.. indeed it will be oozing but avoid covering it and better keep it open and do not touch or play with it too much to avoid causing irritation and slow down the healing process. patience my friend and you will be all done with it.. recover soon man!

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  97. 101 Scott October 9, 2014 at 10:48 pm

    Unfortunately the curse of the perianal abscess attacked me recently and I had the proctologist drain it. I am looking for way to avoid having it become the wretched fistula of hell. Any ideas how to avoid the fistula after having a perianal abscess drained? Even doctors are clueless here. Great blog and sad that very few are brave enough to post such horrible things online and how they cured them.

  98. 102 becky October 10, 2014 at 3:37 am

    I had an large abcess appear several months before the fistula appeared – almost a year prior. Maybe TMI but i used to squeeze all the pus out of the abcess…which i probably made the fistula form by doing this. I now believe if i took care of it right away i wouldn’t have developed the fistula. Hoping you don’t have to experience this fun. I don’t know how they can be stopped, wish i could answer that…just don’t do what i did!!

  99. 103 Scott October 10, 2014 at 4:32 pm

    Becky,

    I had the proctologist drain the abscess two days after it appeared and right now I’m taking sitz baths daily to keep it clean. Hoping it heals normal without becoming the fistula of death. It’s amazing how little medical science knows how to deal with these horrible medical conditions. They have plagued mankind for thousands of years.

  100. 104 becky October 13, 2014 at 2:16 am

    Scott, i was told one possible way to prevent it is to maintain regularity. Mine came shortly after having a baby and i was plagued with constipation during the pregnancy. The constipation could have been a huge factor for me. I take daily fiber pills with hopes that i never have to deal with it again!

  101. 105 Scott October 13, 2014 at 4:23 am

    Thanks Becky,

    I’m taking organic psyllium fiber daily and no more constipation so at least that’s good. Hoping it heals without getting worse. This has been a nightmare compared to kidney stones.

    Scott

  102. 106 jerome November 29, 2014 at 1:29 pm

    Hello.. I just want to share my experience about fistula and how it healed. And sorry for my wrong grammar.
    I had a fistula march 2013 and I got operated august 2013 with 2 holes, and just like the other story it took so long to heal inside(august 2014).. But I want you to try what I did, but it’s a little bit nasty..
    The outside healed just maybe 1 or 2 months.. But inside is not healing and it’s so disgusting because some puss coming out and it’s so irritating. Then June 2014 a hole appear again, And I’m a bit scared because I thought I gonna be operated again, So I visited my doctor and he gaved me antibiotic but it’s not that helping. So there is one time I prayed to tell me what to do everyday i Prayed because I feel like I can’t live normal.. And there is one time it just came in my mind that to be able to heal inside I have to clean it inside. It’s kinda disgusting but it is effective.. I soak my finger with soap and I insert it in my anus(just one finger) I clean it twice a day and everytime I finish poop. At first of course it hurts and just 1 second I put it out. And after 2 or 3 days I’m able to clean it for about 5 seconds and I’m getting the puss out and some blood. And then wash it by using shower so that water rinse inside. And after I wash I put betadine in a cotton buds but I wrap it with cotton to make it thick then insert it. And the hole gone for maybe 2-3 weeks. And week after week the puss got fewer and fewer and I didn’t do fiber diet or whatever. I just cleaning it everytime.. Just don’t be physically active like lifting or running.
    I hope these helps you.. Ask me everytime if you have a question

  103. 107 Craig January 21, 2015 at 1:41 am

    I just had a fistulotomy on Jan 15 2015. And I really wish I had a time machine just to tell myself that all the stress anxiety and fear was so not necessary. I haven’t had to take any pain meds at all. The pain the fistula caused was way worse than the surgery. Anyone who hasnt had the procedure done and is really worried about it DONT BE. You will be fine and all the anxiety that you feel will go away. I had so much anxiety when I was told I had a fistula. I don’t want to make this a long post. Just know I had so much fear and anxiety wasn’t social anymore and just really depressed just like someone reading this now is. If you want to get out of that awful funk your in right now, do the surgery and get your life back. Im just repeating myself now.

  104. 108 anon February 2, 2015 at 9:32 pm

    I am a 49 y/o woman, four days post-op fistulectomy with hemorrhoid removal and a colonoscopy.
    I found the most helpful and useful information here just 48 hours before my procedure. Some of the stories gave me reassurance, some caused me a little anxiety, I must admit– but what was most helpful was reading that I wasn’t “alone”, finding very helpful information on taking care of the surgical site post-op and information on the healing process itself. Honestly, I am amazed at how much discomfort I lived with on a daily basis versus the very minimal discomfort I have had so far postoperatively (and I was really hoping that was going to be true for me as I know that for some it is not).
    Yes, the area is tender, it’s prone to get uncomfortable and the ritual of using the toilet and the sitz baths can be time consuming — however, reflecting on life before the surgery- it’s night and day. Also, for me the most difficult part is “not doing” and letting the healing process happen – I’m a very active person and I’ve had to take it easy and will have to continue to do so for about a month.
    I must also admit I almost let the fear and anxiety around the unknowns of the surgery and recovery postpone it. I’m so glad I didn’t.
    Thanks!

  105. 109 RS May 10, 2015 at 1:24 am

    Thanks Craig,
    I’ve been referred by my GP to a specialist in 4 days, and have been in that anxious dark hole but after reading everyone’s comment’s its so reassuring.

    I’ll see what the outcome is but I’ve had a very similar experience to a lot of people here and although I feel like an idiot for leaving it for so long before seeking attention, it is definitely reassuring to know I’m not the only one and that medical attention is the best course of action.

    If it comes to surgery does anyone have any advice especially for recovery? and sports, as I train/compete daily…

  106. 110 Bk May 10, 2015 at 1:46 am

    My experience in recovery, i did the first seton procedure for my fistula which it didnt work.. Then i did the LIFT operation.. Same result also,,, depends on the fistulas complextion i guess! You will be relieved of pain after 1 day but the abscess is sooo annoying! As for excersice dont worry you can do whatever you want!

  107. 111 Dave Nichols May 10, 2015 at 2:59 am

    I can tell you with 100% surety that this surgery will change your life. I suffered for YEARS before my surgery and this hour long procedure was worth it’s weight in gold. My life changed considerably for the better the minute I was rolled out. I was back on my feet and working about 3 weeks after surgery. Minor pain, no problems.

  108. 112 RS May 10, 2015 at 3:26 am

    Thanks guys.

    Dave did you mention earlier you cycle? I ride and race, and currently one theory is that the abscess may have been caused by a fissure which was cycling related, which did actually heal but may have with complications I obviously ignored.

  109. 113 Dave May 10, 2015 at 4:27 pm

    At the time of my surgery I was a game warden and trying to be very active with my wife who is 12 years my junior. My surgery was in May of 2012 and I was back on duty full time 4 weeks after surgery and active at a level that I hadn’t been in years. Hiking and riding bikes. I suffered for so long I forgot what a ‘normal’ life felt like. Post surgery I had very little pain. Make sure to take the stool softeners and wash your asshole with the sitz bath after EVERY poop. I’m retired now from law enforcement and spend my days in my garden and workshop or cycling with my hot wife. These things would’ve been impossible with a leaking fistula. Get the surgery, heal, live life.

  110. 114 Tom May 26, 2015 at 5:41 am

    Like others before me…i just want to reiterate that the anxiety is totally not worth it. just look up a colorectal surgeon and go get yourself checked out. i just had my fistula layed open 2 weeks ago. the day after my surgery i was just waiting to feel pain…nothing. then second day i was like surely i will feel some pain today…nothing. basically, after 2 weeks postop now and i can absolutely say any discomfort i’ve experienced thus far is absolutely nothing compared to the pain of my first abscess. in all my of my anxiety ridden googling, the original guy who started this blog sticks with me the most…”If you came to this blog because you’re suffering like I was, don’t be a fucking douche bag. Go to the god damn doctor.”

  111. 115 RS May 26, 2015 at 6:16 am

    Thanks for this Tom, these comments definitely help, surgery is booked in less than 7 days. Heal up!

  112. 116 Tom June 5, 2015 at 1:30 am

    had my 3 week checkup with the specialist. somehow by the way it was healing up he said my fistula most likely started as a fissure. kinda confirmed my suspicion to begin with. how’d the surgery go RS?

  113. 117 Rob rs June 5, 2015 at 2:11 am

    Hey Tom,

    Great to hear. How is it healing?

    I had a fissure around a year ago too, the specialist’s didn’t have any comment on that as he never saw it and as far as I knew it healed fine.

    They found 2 fistulas, one has a setum and the other they couldn’t locate the full tract. I have another consultation soon which will discuss next steps, hopefully the setum allows surgery on the first one and an mri for the second.

    Appreciate the thoughts.

    And for those that are unsure, even though my treatment is looking slow and tedious, the swelling and itchiness are completely gone from just the setum, there is some slight discomfort from the bandages but I was up and doing my normal routines the day after surgery.

  114. 118 Tom June 5, 2015 at 2:22 am

    Dr. said it’s healing well, says you just gotta have patience cause the location is literally a crappy place to have an open wound. Good to hear to you’re finding some relief with the seton.

  115. 119 Jeremy July 18, 2015 at 8:24 am

    I first developed my access about five years ago and first noticed it at work. It was a muggy, wet night delivering pizza, and I just assumed wet clothing and the heat caused the anal region to swell a bit, which aggravates some old hemorrhoids. The days passed and I noticed a lump on my cheek growing larger and larger. I’m not the sort to fly off to the doc, so I put it off. Huge mistake!

    The abcess started getting infection into my blood and I got deathly ill. When I finally went to the ER, they did an emergency drain and had me cooped up for four days, packing and repacking it. Upon discharge, I continued the packing and unpacking until it fully closed…and everything was great! Until three years later.

    The access and reformed fistula came back with a vengeance. A second trip to the ER (I’m a veteran without insurance, so I go to the VA) and they drained it again. Outpatient this time, I did the packing thing again until it closed. A few .months later, while moving and cutting up trees, the scar split open and began leaking. It was relatively painless (by comparison) so I went to my GP who had a look and said to keep it clean and dry, but if it started to smell or hurt, to come back. A few months later and it still hasn’t closed, but was no worse.

    This time I scheduled an actual surgery and had a Seton placed. There was no fissure, but the fistula ended right at the spincter wall. They did an EUA and ran the Seton right along my spincter muscle to the original drain on my cheek. I have to say it’s miserable sleeping, sitting on the couch or car seat, and it’s been a week. Seepage from the Seton is easing up, but bowel movements hurt…mostly since it just hurts to sit in general. All the stool softener in the world aren’t helping the BMs get started, though once the proverbial cork is popped, the next instant is full release.

    I know it’ll get easier and at least I’m not sleeping 16 hours a day like the first three or four after discharge. Just wish I could poo without a suppository or Vaseline to kick-start things.

  116. 120 gladimbetter January 4, 2016 at 7:23 pm

    So this is my story:

    It’s been a long two years, and I reiterate a looong two years. I promised myself during a very low moment that if I ever found myself healed from this Anal Fistula(AF), that I would take the time to write a detailed blog or statement which included all of my symptoms, progress, and treatment of it, so that others who may be experiencing the same things wouldn’t have to search as hard as I did to find some similar experiences. When I finally realized I had a problem, I spent many, many hours on google, and various medical websites, and while I did find many pages dedicated to Anal Abcesses(AA) and Anal Fistula(AF) none of the pages contained a thorough list of the progression of the condition. Going forward in this article, I will refer to both conditions as AA or AF. First off, here comes the all too important disclaimer that I have to post in this day and age. I am NOT a doctor, nor do I have any medical experience other than that of a first responder. I recommend anyone suffering from AA or AF to please head to your local doctor, get checked, and make educated decisions. I created this write up to help, so please use it to further your knowledge and not put your health at risk. I am hoping it will be slightly entertaining and can help you laugh at your current situation, as I know its no laughing matter. Depression can set in very quickly with this condition if you let it. I will also warn you that it is quite wordy, and long mainly because I am also using it as a way to vent after having gone through this. Feel free to skip ahead if it’s too long and please understand that no one is forcing you to read it.
    Ok, now that I’ve stated the why’s of this write up, let me set the scene. If you’ve managed to stay with me this far, thanks it’ll be worth it to continue reading. Approximately two years ago, I developed a small but sizeable lump on my left buttocks. It was located low, just above where my left cheek transitions into my leg, close to the crack. It felt swollen, and was sore to the touch. I’ve had these before. Never there or on my buttocks but I’ve had little skin “pimples” under my armpit, or on my calf, etc… so I didn’t think much of it. Within a few days it began to swell, almost doubling in size. The pain was getting much more severe, and I was getting a little concerned. The pain seemed to be worse at night, and made sitting down unbearable. I’m not one for doctors, so I decided I would suffer for a while and hope it came to a head. Well it didn’t. In fact it started to get so painful that I was sure I would have to run to the E.R. It had become a large, almost golf ball size lump under the skin and was showing no sign of bursting. The pain was becoming so unbearable that even when I wasn’t laying on it, or sitting down, I could feel a throbbing pain that just wouldn’t let up. In one last fit of rage and desperation, I stepped into the bathroom and began to squeeze it. Now I’ve got a damn good threshold for pain, but this was almost too much to bear. As much as I wanted to squeeze it till it popped, the pain was just so much that I could only exert small one second pinches at it. After I was done and couldn’t squeeze anymore, I crept back into my bed alongside my wife and stood quiet about the whole thing. I mean, this is an embarrassing problem to have, and I say this even today, this is a really hard problem to accept. I tell my wife EVERYTHING, but didn’t want to tell her I had a golf ball size pimple on my ass. BTW, did I mention that I plan to be completely graphic during this blog? If you cant take the language, you’ve been forewarned.
    Ok so a few days went on and the pain continued, I could barely sit, and if I did I would sit crooked keeping all the weight off my left cheek. I was doing a pretty good job hiding it, but I was growing increasingly concerned. I decided I would wait a little longer. So during one of my daily checks, which required me bending over with my drawers down while looking back in the bathroom mirror, I discovered the lump looked a little different. It appeared that it was finally forming a “head”, as I could clearly see a small white lump in the middle of it. So what to do but help it along, so back to squeezing I went. It didn’t happen right away, but I’m sure the squeezing was helping to form the tunnel that would soon be my worst nightmare. A couple days of squeezing finally proved its worth when I felt a small tearing, deep inside the lump. As I continued to squeeze I felt a final pop and my fingers were wet with what could only be described as a putrid sticky white and yellow pus. It actually surprised me when it popped, as I had been squeezing for days. I washed away the filth from my hands, got some toilet tissue, and got down to do some real squeezing on this mother of all pimples. Well folks, it bled…and more of the yellow stuff, and it was absolutely disgusting. Again, this was just a “pimple” so no biggie. After I had sufficiently squeezed this thing out, I figured I could let it be as it was still really painful to squeeze, but I was feeling a little relief. I could always squeeze more tomorrow until it was gone. I went to bed, and for the first time in many nights, I was able to get some sleep. It still hurt. I knew it was there but It wasn’t throbbing anymore. I patted myself on the back for a job well done, and fell back into sleepy land.
    The next morning when I woke up, as I sat up in the bed I could feel a wet feeling in my underwear. I remembered what I had done the night before so I went to the bathroom to check, and sure enough my drawers contained a heavy mixture of blood and pus. Enough that it went through my pajamas, and onto the bed sheets. I was extremely stressed at this point, but convinced myself that it was a positive thing because now that it had popped and was draining out I would soon be my normal self again. So fast forward a few days, and this thing continued to leak blood and pus out onto my drawers. I was getting a little concerned and very nervous to go outside, especially to work. I work with the public in a uniform for god sake. What would I say if someone noticed? The discharge was often enough that it would stain through both layers of clothing and onto whatever I was sitting on. At this point, I decided to try putting a band-aid on it so it could absorb the discharge while it healed and I could save face while out the house. This didn’t work well at all, as the discharge was way more than a band-aid could handle and made for an interestingly painful time when it had to be removed. I wish I could say at this point that it healed and all was well but that’s just not the case. It continued to leak for a couple of months. I spent a lot of time on the internet performing google searches, and could find plenty of similar experiences, but with a mixed bag of symptoms. Some matched mine, some didn’t, but they all seemed to end the same way…a horrendous surgery. Well I figured I had prolonged the inevitable long enough, so I made an appointment to see my local doctor. Only problem is my local doctor, like most had no appointments available for some time. So I found an urgent care facility near me, suited up and headed out towards them.
    My arrival at the urgent care was like any other. I checked in and sat down. Having never been there before, I prepared to tell some guy about this extremely embarrassing issue I was having. The nurse calls me in, and that’s when I realized that I have to describe this problem to not just the doctor but to a FEMALE nurse. This should be interesting. I tried my best to explain to her what was going on without being too detailed or graphic, after all I was going to have to tell the doctor anyway. I did explain to her that I believed I had a ruptured AA going by what I could find on the internet. She replied that she would inform the doctor and that she would be with me in just a few minutes for my examination. Huh??? Did she say SHE would be with me? Yes folks, turns out the doctor was a female, and I was gonna be baring all and showcasing this disgusting horrid condition to a woman. I have nothing against women in the medical field, but I was very ashamed of this whole thing. So the doctor came in, and asked me a lot of the same questions that the nurse had already asked me. I was more specific with her, and told her exactly what was wrong. At this point she began her examination, so after gloving up she asked me to drop my pants and drawers and bend over the examination table. She then proceeded to perform what could only be described as an all too personal investigation of my body from the inside out…literally. My shame seemed to fade at this point as once you find yourself exposed in this manner, there just isn’t much more that could be done to cause any more embarrassment. She was squeezing the lump from inside of my anal cavity using her fingers and doing so without any real worry about hurting me. There were a couple of moments where I almost felt my legs give away under the pressure of her squeezing. After the examination was complete, she informed me that she did in fact believe that I had an AA, and that she was going to prescribe a regimen of oral antibiotics for a ten day period. I recovered what was left of my manhood, and thanked her for her time.
    I was feeling hopeful at this point, as I had seen a doctor, got a diagnoses, and was prescribed a solution. High fives all around! So I filled my prescription and began to take my prescribed dosage. After about 6 or 7 days I began to notice that the lump was disappearing. I was sure at this point that I would soon be back to normal, and that my infection was being cured by the antibiotics. After my prescription had run out, the lump had shrunk greatly in size, but I could still feel a small pea sized mass in there. It didn’t hurt anymore, and I felt like I was almost healed. There was still a little light bleeding and pus drainage but I was feeling better so I wasn’t as concerned. After a couple of weeks, the small lump persisted, but the pain did not. I was feeling pretty good and confident. Then one day I was using the bathroom and strained a little. It wasn’t until I wiped that I felt the same damn lump, swollen and back again. How the hell did this thing come back in the course of 20 minutes? It felt like it did back when I first went to the doctor, except now it was bleeding. I felt horrible, and angry all at the same time. Wasn’t sure if I should go back on antibiotics, as they say you can build an immunity to them in short order. I was definitely at a loss.
    The next few days were more of the same, except the pain wasn’t as painful because it was draining on a regular basis. There were times when I would sit down, and not only would it drain onto my underwear, but I would feel it drain from inside my anus and drip out onto my underwear. Almost as if the abcess had opened on both sides, like a tunnel. It appeared that my AA, had made the jump to an AF, and I was horrified about it. When I passed gas, I would feel it fill the AF and cause quite a bit of pain, then slowly “air out” as the gas slowly bled out. Things were definitely taking a turn for the worst, and the blood was a bright red, mixed with a smelly pus. I was having constant itching, and horrible soiling of my clothes. Imagine a wet bottom that could not be kept clean or dry no matter what you did. Needless to say, I made another appointment with a doctor, but this time it was a specialist. I was sure that they have seen this before and would be able to tell me what was wrong and how to fix it. The visit was very similar to my first experience, except that it was a male and I was feeling less anxiety having already been through this. What was supposed to be the beginning of a solution, turned out to be even more frustrating as the doctor who was examining me stated that it looked just like a pimple. He did the inside your anus check and squeezed it. Only a little pus came out. Not much at all, and not much blood either. Go figure, it was acting like a car when you bring it to a mechanic. He didn’t seem to understand the agony I was going through, and said he couldn’t feel much of a lump at all. I reached down and could feel how huge this thing was. Now maybe that’s because its part of MY body, but he just didn’t seem to be worried about it at all. Once again I gathered my self together and continued home.
    So over the next coming weeks, I continued to search the internet top to bottom, and the more symptoms I gathered the more I believed that my AA had developed into an AF. What led me to believe that, was the presence of an external opening, and although I couldn’t see it I knew I had drainage INTO my anal cavity. I never knew where it was going to drain from when I sat down, and keeping my clothes clean were next to impossible. I could actually bend over in front of the bathroom mirror, and squeeze from the outside and watch as a drop of blood and pus leaked out of my anus. The only symptom I had not developed was incontinence, which is sometimes associated with this condition. I also had a horrible smell due to the seepage, even if I had just showered. I was miserable, and determined to find an answer. I had looked at the surgical options, which are pretty horrifying and horrendous. The images found on google look more like flesh wounds than they do outpatient surgery. The recovery takes quite a bit of time, as well as not always being successful. I read about how the surgery can often fail to heal the AF, and can often leave the patient permanently incontinent. I didn’t want this to be my future, but for now it was my reality.
    Ok folks, if you managed to read on up to this point I commend you for really wanting to cure your condition. You are at the same point I was. One day I ran across an advertisement that spoke about healing an AF using natural ingredients, and even had a Youtube video to go along with it. I could see that it was just another scam site attempting to drain the pockets of its viewers, so I took note of some of the ingredients and headed out towards my local Vitamin Shop. When I saw how much everything costs, I decided to try the one item that seemed to have the biggest effect according to the website. So I purchased a months worth of Oil of Oregano, and took my first dose in the car as soon as I got outside. Within a week of taking the oregano, I noticed a change that I couldn’t explain. I still had drainage, and I still had bleeding but now it was much heavier. I didn’t know if this was a good thing or not, but it was a change nevertheless and I presumed that it was my body releasing some of the infection it was holding in. At the thirty day mark, my pills had finished and my AF was still there alive and well.
    Not knowing if I should go back and buy more, and getting increasingly frustrated I sat hopelessly on my couch one day. I thought about what else I could do, and what my next step was going to have to be. Depression was definitely a factor, as well as the fear of soon becoming incontinent like all those people I read about on the net. I got anxious, and decided to try a cream that had worked wonders on my infant son when he had a horrible diaper rash. It was called bag balm, and is sold at CVS. It was originally designed for chapped cow udders, but parents have been using for years on baby butts. It’s very effective, so I figured that it couldn’t hurt. I immediately placed it on my AF, and went on with my day. I applied it for about two weeks. No real change in anything, and once again I was losing hope. I spent a lot of time praying, and wondering why I had to go through this. One of the things that blew my mind was the fact that according to various writeups, AF’s are very common and have been for many years. It can occur to almost anyone, and it’s really just an infected gland that led to the AF. Of course it can be a symptom of a more serious condition like Chrohns disease, but doesn’t mean for sure that your afflicted with a serious condition at all. I thought about how many people over the years must have been afflicted with this, and question how they cured it. I’m sure surgery wasn’t the only answer. Not everyone has medical, and people have been dealing with this condition since the beginning of time. I decided to hold off again, and go about my life the best I could.
    Well I’m not sure if its just because of the length of time, or the cycle of the condition, but I noticed over the next few weeks that the lump had gotten smaller again. So decided to reapply the bag balm every couple of days to help with healing. Now most articles say that the AF must heal from the inside out, which coincidentally is why they slice it open in its entirety. I figured that if I could get it to heal from the outside inwards towards the hole in my anal cavity, then it would have a similar effect. Well I don’t know if it was the timing, or just length of suffering but I began to notice less bleeding and drainage. The lump was smaller, and was bleeding less when I used the bathroom. I added fiber to my diet in the form of “Shredded Wheat” to minimize my straining when passing a bowel movement. I also avoided any unnecessary or excessive wiping. I continued to use the bag balm, and over the course of the next couple of weeks it seemed that it was healing very well. The fiber seemed to help tremendously. I wanted to avoid rupturing anything as much as possible.
    Folks, over the next few weeks everything got better, and better. The lump became so small I could barely feel it. The bleeding had stopped. The drainage into my anus had stopped. Life was beginning to look up, and I was beginning to feel like myself again. The odor was gone, and passing gas would no longer fill up the AF and cause pain. Could it really have healed? Well folks, that was almost three months ago, and I am VERY proud to say that my condition has subsided, and I no longer have anything in the area where this golf ball size lump stood. I was very reluctant to publish this writeup, as I feared it may come back. Honestly, that’s probably a fear I will always carry with me from now on, as it’s been literally two years of utter and secretive HELL. But patience is good, and GOD is GREAT. Barring any form of a relapse, I can honestly say that my AA and subsequent AF, is cured and without having had a surgery. Many medical writeups say that an AF will not heal without surgery, and that may be true in many ways. My thinking was that the human body knows exactly why many things occur, and the formation of the AF was it’s way of ridding itself of the infection. It was a matter of time that was need to heal the AF, and that’s what many people lack this day and age. Surgery is supposed to be the quick fix for it, and it may work 50% of the time, with only some of the patients experiencing permanent incontinence after the procedure, but I bet that if you’re one of those people you will wish you had waited. I am not even close to being a doctor, but I know that sometimes the body just needs time to work some things out, and maybe a little help. I feel I gave it that with the squeezing, the antibiotics, the oregano, the bag balm, my prayers, and most importantly time. I don’t know if this article helped anybody, and I can’t guarantee that following my steps will help even a little, but if nothing else I hope it gives hope to those who may have already lost theirs. Six months ago I had to look down at the seat every time I stood up, and today I am able to embrace having my normal life back. This is a serious medical condition, and a disabling one that most people would not speak about. I am sure that there are many out there suffering quietly to themselves, but stay strong because your body can heal naturally without the use of surgery. Please remember that I am in no way a doctor, and make this decision using your best judgement. I would at the very least consult a doctor so they can rule out any other disease or conditions. I wish everyone good health, good luck, and a great life. All I ask is that if you have negative comments to share you keep them to yourself so as not to undermine someone else’s chance at reading this and trying to heal themselves. If it has helped you, I’d love to know about it. Thanks again for reading. God bless you all.

  117. 121 Pete March 13, 2016 at 11:30 am

    gladimbetter I am sorry to let you know your fistula is not cured at all. It is just “dormant ” and you can suffer a flare up at anytime. I have been in your position where I thought the problem had gone away but it always came back after a few months. Three months are nothing sorry nor it means you are cured. I had surgery last year which went very well and 10 months later it came back again.. If I were you I would seek a colorectal specialist and probably get an MRI done as I can assure that without surgery is not if but when it will come back. There is no such thing of healing from outwards. Best of luck!

  118. 122 B.K March 13, 2016 at 11:35 am

    Hi all, i had my fistual cured after a long fight of 1 year. The re-occurence if the fistual is very high unless you are on Meds. Thank god its been 7 months and no news of my fistula coming back. The Dr prescribed me Imuran, Pentaza,. He told me these meds greatly reduces the occurance of the fistula.

  119. 123 Hurt ass March 21, 2016 at 11:32 pm

    I had fistula surgery the the first doctor just stiched up my drain hole I was in horrific pain for 6 weeks till I found a new surgeon who did a fisuletamy now 10 days later I’m starting to heal.

  120. 124 P sharma April 15, 2016 at 6:46 pm

    Dearl all,
    I also had fistula one year back,
    1. Started like golf ball like big lump cannot sit.
    2. Then it bursted inside anal hole and drainage started.
    3. Doctor advised drainage in May 2015 and small hole near anal hole.
    4. It resurfaced again this time again making another hole inside anal.
    5. MRI done it was high fistula crossing superstar elevator muscle.
    6. Within few days fistula made external opening m, it was very painful bursting of external opening.
    7. Doctor recomended another surgery in September 2nd surgery done, it was worst experience I was given GA and.very big hole in my buttocks when I came sensus I was screaming with pain.
    8. They had put seton in internal and external opening and asked to tight this thread every 2 weeks. It was very painful.
    7. In December again pus and another hole outside and seton also there.
    8 in February 2016 another MRI and fistula still same as 1 year back, high fistula with piercing supers levator muscle.

    9. My doctor asked they will keep on tightening seton, was in real fuss.

    10. Then came to know about one col. Rectal surgeon who only do high fistulas and he was based in Mumbai india.

    11. He was very good surgeon removed seton and surgery no pain March 21, 2016 and next day discharged, stayed with my wife at taj hotel for 10 days he had expert staff for dressing.
    12 while dressing met so many patients from different parts of india and abroad. All were happy to reach this doctor Pervez Shaikh.

    13. Less than one month today 15yh March but looks recovered.

  121. 125 Om Ayurvedic Clinic July 8, 2016 at 9:01 am

    This is world’s first animated video showing formation of anal fistula and action of herbal ayurvedic ” Kshar sutra treatment “. This treatment can cure fistula permanently without surgery & antibiotics.


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